Monday, 21 October 2013

Monday Muster

Happy Monday dear ones, have some accurate-as-ever xkcd:


I sometimes want to hunt down people who design sites with autoplaying video or "background" music and demonstrate just how startling and unpleasant it is if you already have sensory issues to start with.  It's like being hit unexpectedly over the head with a cricket bat.  Don't do that.  Especially if you then expect me to buy something from you.

Does the spoon theory work for you?  I use it, even though I'm not totally comfortable with it.  (For a start, it was conceived to describe chronic illness, and I worry that I'm stepping on toes by co-opting it to talk about autism.  And secondly, unless you know the history behind it, "spoons" doesn't give you any clues - you couldn't work out for yourself what it meant if you heard it in passing conversation, they way you might be able to with Karla Fisher's tokens analogy.  On the other hand, if you say you're "low on spoons", in some circles people will understand what you mean, which is a big plus.)

Luna Lindsey has an interesting adaptation of the spoons theory for autism, which pulls together not just energy itself but processing time (a big one for a lot of us) and brings in a gaming in-joke as well.  If you ever hear the phrase "reticulating splines" on this blog, you'll know who I stole it from.

Autistic Big Bro Gerard Atienza has added his voice to the discussion about "person with autism" versus "autistic person".   He raises the point - oft raised by autistic writers, but not often heard by the wider community - that it really is best to ask what terminology the person you're talking to or about prefers rather than just assuming it's one or the other.  The example Gerard used was when he and another student were discussing person- versus identity-first language in an interview:

"I asked him: “What do you preferred to be called: a ‘person with autism,’ or an ‘autistic person’?” Patty goes: “I prefer being called ‘autistic,’ because that is what I am.” After the interview, his Mom, an autism advocate herself, told me that she was surprised. She happened to be an advocate of person-first language... and she admitted that she haven’t even asked her son what he wanted to be called."

On the Autism Women's Network, Jean Winegardner's been writing about acceptance, and questioning why autistic people are expected to bend over backwards to fit in, in a society which does precious little to fit us.

"Why is the onus on the disabled to be accepted? Why is it our job to make you accept us?"

Good question.